There is good news and bad news with both boys.
B is doing a lot better! Ever since I took him to the doc for a height/weight check he has been eating what appears to be a semi-normal toddler amount. So either he’s been f@%#ing with me this whole time and finally realized he pushed me too far when I was going to test him for Celiac, or something changed.
Coincidentally (or not?) that same visit was when the doc told me to cut soy out of my diet for F. Probably B stopped getting most soy then too since he eats a lot of what I eat. Then after about a week of great eating and me scratching my head, he had a soy hot chocolate from Starbucks. Two hours later he had some obvious tummy troubles, and then basically didn’t eat for the next 2 days. As soon as that was over he was back to consuming almost enough calories to live on. So, until he proves me wrong again, I’m going with the theory that he has not only a dairy allergy/issue, but a soy one as well. The good news there is (maaaaybe?) we figured it out. His mission on this planet is to make me crazy and shave years off my life though, so I’m not putting a lot of stock in this diagnosis at this point. I’m just excited that for now he is eating something. The bad news is if it was the soy then I basically poisoned him for almost 3 years.
Speaking of poisoning my kids, F is still having issues. They even seemed to be getting worse not better after I cut out dairy, soy, wheat/gluten, eggs, corn, and tree nuts. Then I ate a ton of gluten-free Rice Krispies mixed with rice protein powder (don’t be jealous!) and his body completely revolted. Now in the traditional allergy world rice is supposed to be super safe and hypoallergenic so wtf. Basically though his reaction was so bad that the doc was saying we needed to test him for anemia and put him on “hypoallergenic” formula immediately if it continued. So since I want to keep nursing him (for reasons I’ll go into another time) and I think we can eventually get to the bottom of this, I’ve gone on an elimination diet. Dr. Sears has a popular one, I mean “popular” with the really small group of moms who have to go down this road, but it is rice based and requires meat so no thanks. I made up my own and it includes bananas, pears, coconut, squash, potatoes, and peanuts. Basically I’m eating just that (plus coffee and diet sierra mist because sanity) and hoping F gets better. Then if he does I can add foods back in one at a time and look for any reaction. I’m keeping a running list of ok foods.
You would think it would be horrible and I’d be wasting away, but you’d underestimate my ability to eat straight peanut butter for days. I haven’t lost a pound and haven’t totally gotten sick of PB yet so hooray. Fingers crossed he can quit it with the bloody diapers and projectile vomiting. The good news is F is doing better on this diet so far. The really good selfish news is I don’t think I have to cut out peanut butter and change my blog name. The bad news is obviously that this kid has issues with food and introducing solids should be a lot of fun.
In case anyone cares here are the common triggers for FPIES. They aren’t your parents’ allergens.